Still alive and kicking. I know that when a cancer blog goes quiet for several months you start to wonder.
On the surface, largely ignoring the fact that I have cancer. Deep down, minorly freaking out.
PCR test in August came back at just over 3% IS, which is the lowest PCR that I've ever had. Same song and dance ensued. Doctor strongly encouraged proceeding to transplant, I dug in my heels and asked for more time. Since I am ultimately the decision maker; time reluctantly granted.
Regular oncologist is useful for writing prescriptions, obtaining prior authorizations, collecting copay amount, and deferring everything else to UCLA oncologist. Ordered a FISH test, instead of PCR for testing in October. FISH test not quite as useful to me, in terms of measuring response, since I've only ever had one other FISH test on peripheral blood, and several PCRs. Anyway, FISH results reported 20/100 cells positive for the Philadelphia Chromosome. So, 20% cancer. Most discouraging thing about it was the observation by the analyst: "Although this result suggests a change since the previous studies (2016), when 42-95% of cells showed a Ph, it is consistent with persistence/recurrence of the abnormal clone."
Simply put - three and a half years, and five different treatments later - cancer is still there. But, I mean really, putting it into perspective, WHAT ELSE IS NEW?
Next appointment with UCLA is looming on the horizon. I've had two minor infections this month alone. I haven't had any blood work since October. Totally ostriching, trying to enjoy the holidays, and swallowing my pills everyday.
And life goes on.
